I am 26 years old. The last 13 months, I’ve had 7 cardiac ablations, one cardiothoracic VATS procedure and two pacemakers. I have a diagnosis of Multifocal Atrial Tachycardia and Atrial Myopathy. I’m also 100% pacemaker dependant in my ventricles and I have POTS (postural orthostatic Tachycardia syndrome).
It started out when I was 24. I collapsed and for months there was no clear diagnosis. Finally since last year, I’ve had numerous procedures which have all sadly been unsuccessful in eradicating the condition.
I am about to have another VATS procedure in the next month. So, I’m hoping this will work as we are now running out of treatment options.
My life has changed dramatically since the diagnosis’. I used to figure skate and was part of a synchronised Skating team competing all across the UK. Now I can’t even lace up my boots without being breathless. I’ve not figure skated in just over a year. I also have daily challenges with feeling dizzy, fatigue, irregular heart rhythms despite being pacemaker dependant and the shortness of breath. I also have the need to sit down quite often. I struggle standing up for long periods of time.
Despite having these problems, I still try to live as normal as I can. I still enjoy spending time with my family & friends, just sometimes it’s a case of bringing them to my bedside, since I spend a lot of time in the hospital.
I hope by me spreading awareness of my conditions, it can help someone else come to terms with theirs.